Today Adam and Kylee are holding their own. Adam is keeping his nurses very busy trying to keep him from destating. He is still on the ventilator but off sedation. He was still receiving his steroid treatment. He was destating so low at one point he had to be administered caffeine (I know!!!) to bring his heart rate up. It seemed to be doing the trick, his numbers were much better and steadier after a bit. He is one high maintenance, sensitive, fragile little boy and absolutely adorable.
Kylee began destating while off the bubbler yesterday so she is back on it full time. After a bit, they will begin weening her off of it again. The funny thing is, she is off the bubbler half the time because she pulls it out of her nose or wiggles her head out of it. She doesn't destat then. She also sleeps with her mouth open which defeats much of the bubbler's effectiveness but doesn't destat then. She already does things on her own terms! She is such a tiny sweetheart! Kylee was sleeping during today's visit but Emily got to hold her for a short time later. Mema is visiting her Grandbabies this evening.
There is a big contrast between Adam and Kylee's lung development. Adam's X-ray today still showed inflammation and his destats and numbers confirm it. Kylee's lungs are developing on course with little destating. She has been at normal room oxygen (21%) for days whereas Adam still needs roughly a 45% oxygen rate.
Our little miracles continue to grow day by day. Each day is such an amazing gift.
Thank you for the continued prayers, love, and amazingly kind word so many are leaving here, on Facebook, Twitter, and privately. It is profoundly appreciated and humbling. Thank you. Today was a bumpy but good day.
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| Adam Resting |
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| Kylee Asleep with Her Mouth Open |
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